Is Keratoconus treated on the NHS?
Yes, the NHS does offer treatment for keratoconus, primarily aimed at halting progression in mild to moderate cases—most commonly through corneal cross-linking (CXL). However, the availability of this treatment varies significantly between NHS hospitals, and waiting times can be unpredictable. Vision correction options, especially for more complex cases, may be limited.
According to NICE guidelines, corneal cross-linking should be offered promptly once keratoconus is diagnosed to prevent further deterioration of vision. In private care, patients often benefit from quicker access to treatment, more consistent availability, and advanced technologies tailored not just to stabilise the condition, but to optimise visual outcomes as well.
Can Keratoconus be prevented?
While keratoconus cannot be completely prevented, early diagnosis and proactive care can significantly reduce the risk of progression. Avoiding eye rubbing, managing allergies, and having regular eye exams—particularly if there's a family history—are key steps. Accessing timely treatment, such as corneal cross-linking, can help preserve vision in the long term.
What triggers Keratoconus?
Keratoconus is believed to result from a combination of genetic and environmental factors. Common triggers include a family history of the condition, chronic eye rubbing, allergic eye disease, and certain connective tissue disorders. Managing these risk factors, especially eye rubbing and allergies, plays an important role in slowing progression.
How common is Keratoconus?
The prevalence of keratoconus varies significantly across different regions and populations. While earlier estimates suggested it affected approximately 1 in 2,000 individuals, more recent studies indicate higher rates. For instance, a 2017 study in the United States reported a prevalence of about 1 in 375 individuals. In the Middle East, the condition appears even more common; research from Saudi Arabia found a prevalence of approximately 1 in 21 patients (4.79%), and studies in Lebanon reported rates around 3.3%. These variations may be attributed to genetic, environmental, and methodological factors. Given this variability and the potential for underdiagnosis, especially in early stages, regular eye examinations are crucial for early detection and management.
How serious is Keratoconus?
Keratoconus can vary from mild to severe. In early stages, it may cause only minor vision distortion, but if left untreated, it can lead to significant thinning and irregularity of the cornea. This can result in serious visual impairment and, in some cases, require corneal transplantation. Early diagnosis and modern treatments like corneal cross-linking can dramatically reduce the risk of progression and help preserve quality of life.
Can Keratoconus be corrected?
Although keratoconus cannot be reversed, its effects can be managed very effectively. Vision can often be improved with custom or scleral contact lenses, while progression can be halted with corneal cross-linking. In advanced cases, surgical options like intracorneal ring segments or corneal transplantation may be considered. With personalised treatment, many patients achieve excellent functional vision.
Can people with Keratoconus go blind?
Keratoconus very rarely leads to complete blindness. However, if left untreated, it can cause significant visual impairment, especially in both eyes. In the most advanced stages, vision may be severely reduced and no longer correctable with glasses or standard lenses. With today’s treatments—including corneal cross-linking and customised lens options—most patients retain useful vision and lead full, active lives.
​What is the best treatment for Keratoconus?
Treatment for keratoconus generally falls into two main categories: halting disease progression and correcting vision.
To stop progression, the first-line treatment is corneal cross-linking (CXL)—a minimally invasive procedure that strengthens the corneal structure and aims to prevent further deterioration.
For vision correction, a variety of options are available depending on the stage and severity of the condition. These include:
-
Xenia® collagen corneal implants
-
Topo-guided laser treatments
-
Intracorneal ring segments (ICRS)
-
Specialist contact lenses (such as scleral or hybrid lenses)
-
Corneal transplantation in advanced cases
In many instances, your ophthalmologist may recommend a combination of treatments from both categories to stabilise the condition while also improving visual function. Private care settings often provide access to the full spectrum of these advanced options, along with highly customised treatment plans tailored to each patient’s unique needs.
At what ages does Keratoconus present and get worse?
Keratoconus typically begins during the teenage years or early 20s. It tends to progress more rapidly in younger individuals and usually stabilises by the mid-to-late 30s. Because progression is often silent in the early stages, early detection and intervention are key to maintaining long-term visual function.
What not to do when you have Keratoconus?
Absolutely stop rubbing your eyes. Eye rubbing is strongly linked to the progression of keratoconus and can lead to further corneal thinning and deformation. If your eyes feel itchy or irritated, speak to your eye specialist about treating underlying causes such as allergies or dry eye. Managing these issues can help reduce the urge to rub and protect your corneal health.
Can laser eye surgery fix Keratoconus?
Traditional laser eye surgery procedures like LASIK are not suitable for patients with keratoconus and may worsen the condition. However, some advanced techniques—such as topography-guided PRK combined with corneal cross-linking—may be used in selected cases to improve vision. These specialised treatments are generally available in private clinics with expertise in keratoconus management.
Can I live a normal life with Keratoconus?
Yes, most people with keratoconus can live entirely normal and fulfilling lives. With modern treatment options, vision can often be stabilised and significantly improved. Some lifestyle adjustments may be needed, especially around vision correction, but with good management, many patients continue to drive, work, and enjoy all their usual activities.
What does a person with Keratoconus see?
People with keratoconus often describe their vision as distorted, blurred, or doubled—particularly in low light or at night. This visual disturbance, commonly referred to as "ghosting," causes overlapping or shadowed images, especially around text or lights. Halos, glare, and starbursts around lights are also frequent complaints. These symptoms result from the irregular shape of the cornea affecting how light enters the eye. Early diagnosis and treatment can significantly reduce these effects and help restore clearer, more comfortable vision.
What happens if Keratoconus is left untreated?
If left untreated, keratoconus typically worsens over time—especially in younger patients. As the cornea thins and becomes more irregular, vision deteriorates, and glasses may no longer provide adequate correction. In advanced stages, scarring can develop, and corneal transplantation may become necessary. Early intervention, particularly with corneal cross-linking, can prevent these outcomes and preserve vision.
Can Keratoconus present in one eye or both?
Keratoconus usually affects both eyes, although it often presents asymmetrically—meaning one eye may be more advanced than the other. In rare cases, only one eye shows signs of the disease at first, but the second eye often develops changes over time. Regular monitoring of both eyes is important, even if symptoms seem isolated to one.